Twenty six days ago I loaded the Honda up with enough stuff for a one day trip to Denver....... Four Wednesdays, Four weekend visits with our other half....624 hours.....Twenty six days....and Parklen, Phinlynn and I are still here. Parklen's illness has seemed to steadily increase...as time has gone on, each flare up has outdone the last. This was the worst one yet. This one made him sicker than he has been, this one caused concern in everyone that knows Parklen. This stay in the hospital included a tiny infant to nurse and care for.....this stay included frequent discussion about Parklen's future....and a three ring binder handed to every parent about to take their child into a bone marrow transplant. A binder filled with facts......a binder that will make your mommy tummy churn...... I have spent much time thumbing through the pages of this BMT book.....reading over risks, skimming through rules.....every moment realizing that if I EVER thought...
Today will go down in the books as the longest day ever........ Day Zero. Transplant day. The new beginning. We started the festivities this morning at 4:00 AM......After just going to bed a couple of hours earlier, this was pretty early!!!! Paysen and I headed down to check in for his surgery....you could see the nerves on his face, I could feel them in his tiny hand that I held with in mine.. He had been looking toward this surgery for over a month. There had been so many delays, I can only imagine the things that were going on in My big boy's head...... He mustered the strength to show a brave face, however difficult. We checked him in and headed up. He took comfort in having both parents present for him. He listened as the "Sleep doctor" told of what she would do..... as we watched him we could see the clock ticking, he was growing more nervous. Paysen had a traumatic event in the operating room. It was the worst thing I have witnessed before a s...
Today Parklen was discharged from the hospital.....yes discharged. It came on fast............ They have been talking about it for a couple of weeks.......... I am always hesitant to share decisions that are in the works because there is nothing worse than global disappointment. It is always one thing to have been told you are leaving the hospital and then have something come up (as it often does...) and have to deal with the feeling of getting your hopes up and having them crash. It is a whole different story when the same occurs........only you must then explain to everyone you know what has happened......their disappointment amplifies your own. After years and years of this business I have learned that its best to keep certain things to yourself until you see that the steps have been put it into motion and you know that the ball is rolling. The ball is rolling..... it has rolled.... there is goes....rolling on by. I have been finding myself sobbing........
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