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Showing posts from July, 2014

driving.......

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I was driving last week. The car was quiet.... the road was open...... and I found myself with time to think. Time to think about whatever came to mind. I let my thoughts wander...here and there. I thought of different things, some from the distant past, some from the day before. And. With no good reason at all....... I started to cry. Maybe it was because there was no one there to explain things to..... maybe it was the silence that sucked the tears from my eyes....... maybe it was the pressure of trying to always hold them in. Maybe. Either way, there they were..... hundreds of tiny wet and salty tears... rolling down my cheeks and landing softly in my lap. I started to think about this one particular day a little less than a year ago..... Parklen had begged for a cheese burger.... he wanted to drive through and pick it up. And after weeks upon weeks of him not eating, after pound after pound dropping from his frail frame.... I jumped at the opportu...

A new kind of Independence. . .

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We went to Denver last week for Parklen's appointments. Things went super well. He looks good and he acts good..... and even though his numbers aren't as high as the doctor had hoped.....he was given a little bit of freedom..... Camping is a lot of work. There are lists and lists of things that make it difficult.....for the average person. Camping gets a little more tricky when you add in list of rules for a fragile child in tote..... But...   For the sake of memory making.... in the name of love.... We took the plunge. I have never experienced a difficulty quite like the few days spent on our adventure. I was gifted with visions of happiness that I have been missing for years.... and I was plagued with the duty of balancing Parklen's joy with rules to keep him safe. I cringed with visions of our glass egg with sand in his fingers.... and then bursted with happiness as I watched him run along the beach...his smile bursting th...