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Showing posts from March, 2011
I haven't felt much like blogging lately. . .I haven't felt much like writing at all.  I just seem to be too tired. (And let me mention that I despise daylight savings) Denver didn't go as I had hoped, exactly, but I believe that the doctors heard what I was saying. . .(at least a little bit more)  They have added 3 new meds to his daily routine. One of these is Prednisone, which causes my little love bug to turn into a crazy, fit throwing, brother beating, screaming, crying, sleepless boy.  Parky is going to have some procedures some time next month. Someone asked me if I got scared anymore about Parky and his procedures. . .The truth is I don't.  I don't feel afraid when he goes into surgery, I feel helpless, I feel sad for my baby, but not afraid.  If I ever doubted the power of God's hand on my son, I never could now.  I have seen the miracle of God's love in every day.  I know that he holds Parklen.    I feel old, I look in the mirror and cant bel

Foward March

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Well here it is, MARCH already. March means a lot of things really, Spring is coming. . . .Winter is almost over. . . .The snow is wetter, really lots of different things.  But for me, right now, it means only one thing. . . its time to head down south. I have to take Parklen to the Denver Children's Hospital every couple months, so I am used to it in some aspect.  However, I am completely filled with frustration.  I am frustrated for my baby. . .he has been on treatment for ALPS for 13 months now and truly he is still not better. . .he has improved, he isn't vomiting every second or getting the fevers and for that I am thankful. Parklen just isn't well.  There isn't a night that goes by that he isn't waking up multiple times, because his stomach hurts, he needs a drink of water(he is constantly thirsty and can chug a bottle of water in a matter of seconds) or because he just "has ouchies"  Every day I give my baby medicine (its the kind they give yo