-
I haven't felt much like blogging lately. . .I haven't felt much like writing at all.  I just seem to be too tired. (And let me mention that I despise daylight savings)

Denver didn't go as I had hoped, exactly, but I believe that the doctors heard what I was saying. . .(at least a little bit more)  They have added 3 new meds to his daily routine. One of these is Prednisone, which causes my little love bug to turn into a crazy, fit throwing, brother beating, screaming, crying, sleepless boy. 

Parky is going to have some procedures some time next month. Someone asked me if I got scared anymore about Parky and his procedures. . .The truth is I don't.  I don't feel afraid when he goes into surgery, I feel helpless, I feel sad for my baby, but not afraid.  If I ever doubted the power of God's hand on my son, I never could now.  I have seen the miracle of God's love in every day.  I know that he holds Parklen.   

I feel old, I look in the mirror and cant believe how much I have aged in the past 2 and a half years. I am so tired, and i drag myself through my days. 

But the best feeling that I experience is the feeling of Joy. Happiness comes and goes with your circumstances but Joy remains. I carry Joy with me every day.  I am blessed beyond measure.

Comments

Post a Comment

Popular posts from this blog

Time

-
Image
It sure has been some time. Time since I sat before this blank page that used to bring me such comfort.  Time since I shared deep feelings.. Time since I opened the curtain into my heart, for all to see. Time ticks by. Ever quickly. They say that time heals all wounds... I think anyone who has suffered a broken heart, knows thats not the truth, Who are they  anyway? Time forms. Like the hands of the potter... moving, moulding, squeezing, pinching. As the clay spins, the potter changes it. It isn't healed, it is... becoming something new. That is what time does. It changes us. Into something new. Forms. Different. Pressure is no stranger to me. My life has been woven with the thread of pain, of squeezing discomfort. Tension. Difficulties, Heartache. I recently found myself in thought about who I was. Who I have been.. The little girl, the teenager, the new wife, the young mother, the hospital mom, the friend, the estranged, the sister. I. Have. Changed. I am new. I am different...
Read more

{zero}

-
Image
Today will go down in the books as the longest day ever........ Day Zero. Transplant day. The new beginning. We started the festivities this morning at 4:00 AM......After just going to bed a couple of hours earlier, this was pretty early!!!! Paysen and I headed down to check in for his surgery....you could see the nerves on his face, I could feel them in his tiny hand that I held with in mine.. He had been looking toward this surgery for over a month. There had been so many delays, I can only imagine the things that were going on in My big boy's head...... He mustered the strength to show a brave face, however difficult. We checked him in and headed up. He took comfort in having both parents present for him. He listened as the "Sleep doctor" told of what she would do..... as we watched him we could see the clock ticking, he was growing more nervous. Paysen had a traumatic event in the operating room. It was the worst thing I have witnessed before a s...
Read more

26 days.............

-
Image
Twenty six days ago I loaded the Honda up with enough stuff for a one day trip to Denver....... Four Wednesdays, Four weekend visits with our other half....624 hours.....Twenty six days....and Parklen, Phinlynn and I are still here. Parklen's illness has seemed to steadily increase...as time has gone on, each flare up has outdone the last.  This was the worst one yet.  This one made him sicker than he has been,  this one caused concern in everyone that knows Parklen.  This stay in the hospital included a tiny infant to nurse and care for.....this stay included frequent discussion about Parklen's future....and a three ring binder handed to every parent about to take their child into a bone marrow transplant. A binder filled with facts......a binder that will make your mommy tummy churn...... I have spent much time thumbing through the pages of this BMT book.....reading over risks, skimming through rules.....every moment realizing that if I EVER thought...
Read more