{FIFTY}

-




Today is a very exciting day.......

We are "half-way there"............

Oh YEAH, living on prayer.........

Today is day +50..........FIFTY.....

We are halfway to day 100......the critical turning point.....
Day 100 is when the doctors begin to relax a little bit......when we can start talking about going home....

It has been 50 days since day zero.....
since transplant day.....
Lets recap........

FIFTY....50...5 0.....FIVE TO THE O.....FIFTY.....

Parklen is doing rather well, still.........
He is only needing two appointments a week.....

What a fifty days it has been.........

What a five years......

I have had so much time lately to think..........
Been thinking a lot about where we have been.
The things that Parklen has done........endured.

I cannot tell you the things I feel....
I cannot even think about the days gone by with out beginning to cry.

The last fifty days have been the climactic moment on the roller coaster that is Parklen's life......
The emotions have been up and down.......
The time has passed by quickly and yet at times seemed to be standing still....

Parklen's life has been put on the line....
Parklen's future has been declared unknown.

Paysen, at 7 years old has been able to watch a transformation in his brother that has been put into motion by the donation of a part of himself.

We have spent 50 days watching a miracle take place.
We have spent 50 days flying around cloud 9.

There has been such a transformation in Parklen....
his appearance....
his strength....
his attitude.....
He has smiled more in the past 50 days than his entire life before day zero combined....

It took a leap of faith to travel down this road.
It took us admitting that Parklen's life was worth risking for a chance to save  him.....
A hard summer for us,
a terribly close call for Parklen....

It was just a couple of weeks ago when one of Parklen's longest care givers told me "I thought he would die before he made it to transplant."

My baby almost died.....more than once.
and in the last 50 days I have had the chance to watch him come back to life......

The dark circles under his eyes have disappeared.....
there is meat on his bones....
his cheeks are full,
he looks like a boy.....a healthy, bald boy.

There is a blessing about being in this kind of atmosphere.......
you learn that life is something to cherish.....

I am living in a place where there are sick children.....
a place where some never get better....
I live in a place where children die.....
I see these children, their parents.
and I know, from watching my own baby that the fragility of life is the only certain thing.

We are far from the end of our road,
we have passed the fork, however......
and the direction we have chosen......is the right one.

Here's to the next 50 days...............
and many more.

The best is yet to be.....


Comments

  1. AnonymousDecember 19, 2013 at 6:59 AM

    Wow Amanda Parklen is doing great!!! I wish I was there to see him. Can you tell Parky hi for me? Thanks
    :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-) :-)
    Madysyn Jean. Conner

    ReplyDelete
  2. AnonymousDecember 20, 2013 at 10:29 PM

    What a wonderful miracle God has worked in Parklen. May God continue to work miracles in him. You are going to have an extra special Christmas this year with all yourl children and Devan. What wonderful gifts from God -- his son came to earth to redeem us, and a healthy son has came back to you.

    ReplyDelete

Post a Comment

Popular posts from this blog

Time

-
Image
It sure has been some time. Time since I sat before this blank page that used to bring me such comfort.  Time since I shared deep feelings.. Time since I opened the curtain into my heart, for all to see. Time ticks by. Ever quickly. They say that time heals all wounds... I think anyone who has suffered a broken heart, knows thats not the truth, Who are they  anyway? Time forms. Like the hands of the potter... moving, moulding, squeezing, pinching. As the clay spins, the potter changes it. It isn't healed, it is... becoming something new. That is what time does. It changes us. Into something new. Forms. Different. Pressure is no stranger to me. My life has been woven with the thread of pain, of squeezing discomfort. Tension. Difficulties, Heartache. I recently found myself in thought about who I was. Who I have been.. The little girl, the teenager, the new wife, the young mother, the hospital mom, the friend, the estranged, the sister. I. Have. Changed. I am new. I am different...
Read more

{zero}

-
Image
Today will go down in the books as the longest day ever........ Day Zero. Transplant day. The new beginning. We started the festivities this morning at 4:00 AM......After just going to bed a couple of hours earlier, this was pretty early!!!! Paysen and I headed down to check in for his surgery....you could see the nerves on his face, I could feel them in his tiny hand that I held with in mine.. He had been looking toward this surgery for over a month. There had been so many delays, I can only imagine the things that were going on in My big boy's head...... He mustered the strength to show a brave face, however difficult. We checked him in and headed up. He took comfort in having both parents present for him. He listened as the "Sleep doctor" told of what she would do..... as we watched him we could see the clock ticking, he was growing more nervous. Paysen had a traumatic event in the operating room. It was the worst thing I have witnessed before a s...
Read more

26 days.............

-
Image
Twenty six days ago I loaded the Honda up with enough stuff for a one day trip to Denver....... Four Wednesdays, Four weekend visits with our other half....624 hours.....Twenty six days....and Parklen, Phinlynn and I are still here. Parklen's illness has seemed to steadily increase...as time has gone on, each flare up has outdone the last.  This was the worst one yet.  This one made him sicker than he has been,  this one caused concern in everyone that knows Parklen.  This stay in the hospital included a tiny infant to nurse and care for.....this stay included frequent discussion about Parklen's future....and a three ring binder handed to every parent about to take their child into a bone marrow transplant. A binder filled with facts......a binder that will make your mommy tummy churn...... I have spent much time thumbing through the pages of this BMT book.....reading over risks, skimming through rules.....every moment realizing that if I EVER thought...
Read more