+SEVENTY FIVE

-
Today is day +75.

That does not even seem possible.....
really.

75 days ago I walked Paysen into surgery....
75 days ago I watched as a bag full of his healthy marrow was pumped into his brother.
75 days ago.....

and Parklen has never looked back.

There is nothing tragic to report in the way of Parklen, and that is a combination of amazing and awesome rolled together and sprinkled with tiny sparkles of unbelievable.

He is doing well.
He feels great.
He looks great.
He has energy.
He has days FULL OF LIFE.

He has found a new love for art....which he is convinced was transplanted with Paysen's marrow.
He has found a new love for music and getting his groove on......also claimed to be from the marrow.

Parklen is beginning to learn that healthy kids don't always get what they want......quite a process after an entire life of his way.......but completely necessary in preparation for entering the world as a healthy boy.....

He understands what germs can do to him.....
he doesn't argue about wearing his mask......
he usually has it on before I even have to ask on the way out of the door.....

He races me to the elevator....

Today we celebrated day +75 with a trip to a drive through car wash........sounds crazy, but its about all we can do.......no public outings for this boy...

Parklen has decided that he wants to be a good brother to Phinlynn just as Paysen is to him.....he has been taking this job very seriously.  Recently learning how to feed her, he plays with her, holds her, makes her giggle and always sings her songs....


When I asked him last night what his most favorite part of his new bone marrow was.... he simply stated...."I can play."
What are you thankful for?
What is the best part of your life?

75 days past a place where we never knew we would be....
75 days past Parklen's new beginning....
We are 75 days closer to his new life....
To a new life for the Henderson's.....







Comments

Post a Comment

Popular posts from this blog

{zero}

-
Image
Today will go down in the books as the longest day ever........ Day Zero. Transplant day. The new beginning. We started the festivities this morning at 4:00 AM......After just going to bed a couple of hours earlier, this was pretty early!!!! Paysen and I headed down to check in for his surgery....you could see the nerves on his face, I could feel them in his tiny hand that I held with in mine.. He had been looking toward this surgery for over a month. There had been so many delays, I can only imagine the things that were going on in My big boy's head...... He mustered the strength to show a brave face, however difficult. We checked him in and headed up. He took comfort in having both parents present for him. He listened as the "Sleep doctor" told of what she would do..... as we watched him we could see the clock ticking, he was growing more nervous. Paysen had a traumatic event in the operating room. It was the worst thing I have witnessed before a s
Read more

26 days.............

-
Image
Twenty six days ago I loaded the Honda up with enough stuff for a one day trip to Denver....... Four Wednesdays, Four weekend visits with our other half....624 hours.....Twenty six days....and Parklen, Phinlynn and I are still here. Parklen's illness has seemed to steadily increase...as time has gone on, each flare up has outdone the last.  This was the worst one yet.  This one made him sicker than he has been,  this one caused concern in everyone that knows Parklen.  This stay in the hospital included a tiny infant to nurse and care for.....this stay included frequent discussion about Parklen's future....and a three ring binder handed to every parent about to take their child into a bone marrow transplant. A binder filled with facts......a binder that will make your mommy tummy churn...... I have spent much time thumbing through the pages of this BMT book.....reading over risks, skimming through rules.....every moment realizing that if I EVER thought my life was har
Read more

Whats mine...

-
Image
 Writing is what I should've been doing every day for the last year and a half.  Writing is my escape... my joy.. my pleasure. But. It has been tainted. Turned around and become a fuel for my anxiety.  What if?  What if my words are misunderstood....what if people are offended by my thoughts, what if they think Im saying something I am not..... Again. What if.... There have been depths of pain the past few months that I have never known. And MY GOD ....thats saying something. and speaking of God..... I dont feel much like talking to Him lately.  I try  to. BUT  tears fill the spaces where the words should be. Nothing to say, but a billion WHY'S.... So tonight....I write for me.  I write....and I trust that these words are enough..LOUD enough for God to hear....and raw enough for them to count...as the prayer I cannot muster. So many stories of heartache and pain have been woven into the days, hours.... minutes....seconds of the passing months.  Stories....that most of which, ar
Read more