pass......

-

{Here is my disclaimer.....I have been using my phone for photos more often than not recently and so.....there you have it. A plethora of cell phone pictures........yes, I am lazy.}



Parklen was given another pass today.....
four hours spent outside of the hospital.....

That kid was so excited for round two......
Smiling all the way.

He enjoys normal things so much...
Eating,
playing,
arguing,
running....
boy stuff.

You would not believe how much he enjoys every small detail......
mostly things that you or I may not even notice....
things we most definitely take for granted....

Things that we rush through....
tasks we find annoying,
time consuming......
are exciting and fun to a child that has never felt well before....

He enjoyed a science experiment,
some eating,
some block building,
car driving,
game playing,
eating,
walking,
running,
eating,
He really enjoyed his brother......
and his sister.

Driving in the car on the way to the apartment Parklen pointed to many things....
He ooooooed and awwwwed over things we passed....
geese,
trucks,
cars,
people on bicycles.....
an airplane in the sky....
It was a very exciting three blocks for him.

When I drove him back over to the hospital tonight, he was squealing with excitement over some Christmas lights....
The same lights that I drive by alone with out notice.....
They made him so happy, so excited.....

I am deciding to try and see things through eyes like him.
He appreciates the things we do not.....
He does not take the little for granted....
He is pleased and excited about things that surround him.
and it makes him happy.

Can you imagine living that way again?
There was a point when we all must have to some degree....
as children.

I want to live that way now.
Having big excitement over little things.
Refusing to take for granted the busy moments......

Staring at the Christmas lights,
the dirty geese....
the trucks and the planes....
and allowing myself to appreciate the small......


Paysen was so sad to see Parklen taken back to the hospital.....
I think we are in trouble with these two.
They have never been healthy together........
and after all,
they have a lot of time to make up for.........









Comments

Post a Comment

Popular posts from this blog

Time

-
Image
It sure has been some time. Time since I sat before this blank page that used to bring me such comfort.  Time since I shared deep feelings.. Time since I opened the curtain into my heart, for all to see. Time ticks by. Ever quickly. They say that time heals all wounds... I think anyone who has suffered a broken heart, knows thats not the truth, Who are they  anyway? Time forms. Like the hands of the potter... moving, moulding, squeezing, pinching. As the clay spins, the potter changes it. It isn't healed, it is... becoming something new. That is what time does. It changes us. Into something new. Forms. Different. Pressure is no stranger to me. My life has been woven with the thread of pain, of squeezing discomfort. Tension. Difficulties, Heartache. I recently found myself in thought about who I was. Who I have been.. The little girl, the teenager, the new wife, the young mother, the hospital mom, the friend, the estranged, the sister. I. Have. Changed. I am new. I am different. My
Read more

{zero}

-
Image
Today will go down in the books as the longest day ever........ Day Zero. Transplant day. The new beginning. We started the festivities this morning at 4:00 AM......After just going to bed a couple of hours earlier, this was pretty early!!!! Paysen and I headed down to check in for his surgery....you could see the nerves on his face, I could feel them in his tiny hand that I held with in mine.. He had been looking toward this surgery for over a month. There had been so many delays, I can only imagine the things that were going on in My big boy's head...... He mustered the strength to show a brave face, however difficult. We checked him in and headed up. He took comfort in having both parents present for him. He listened as the "Sleep doctor" told of what she would do..... as we watched him we could see the clock ticking, he was growing more nervous. Paysen had a traumatic event in the operating room. It was the worst thing I have witnessed before a s
Read more

26 days.............

-
Image
Twenty six days ago I loaded the Honda up with enough stuff for a one day trip to Denver....... Four Wednesdays, Four weekend visits with our other half....624 hours.....Twenty six days....and Parklen, Phinlynn and I are still here. Parklen's illness has seemed to steadily increase...as time has gone on, each flare up has outdone the last.  This was the worst one yet.  This one made him sicker than he has been,  this one caused concern in everyone that knows Parklen.  This stay in the hospital included a tiny infant to nurse and care for.....this stay included frequent discussion about Parklen's future....and a three ring binder handed to every parent about to take their child into a bone marrow transplant. A binder filled with facts......a binder that will make your mommy tummy churn...... I have spent much time thumbing through the pages of this BMT book.....reading over risks, skimming through rules.....every moment realizing that if I EVER thought my life was har
Read more